Contemplating the realities of Parkinson’s disease (PD) and its progression can be overwhelming. As we observe National Parkinson’s Awareness Month in April 2025, educating ourselves about the disease, its impact, and the compassionate care options available for those in advanced stages is crucial.

Parkinson’s is not just a movement disorder; it is a progressive neurological condition that affects almost 1 million Americans, with 90,000 new cases diagnosed each year. While symptoms often start subtly, they gradually worsen, leading to severe physical and cognitive challenges.

Let’s learn and understand Parkinson’s to better support those affected by the disease and advocate for improved care and research.

The Progression of Parkinson’s Disease

Parkinson’s disease is a chronic, degenerative disorder that primarily affects movement but also leads to non-motor symptoms like cognitive decline, mood disorders, and autonomic dysfunction.

Early Stages (1-2): Mild Symptoms

  • Tremors, stiffness, and slowed movement (bradykinesia)
  • Changes in facial expressions (masked face)
  • Mild balance issues

Most patients can still live independently at this stage, though daily tasks may become more challenging.

Middle Stages (3-4): Increasing Disability

  • Greater difficulty walking and balancing (increased fall risk)
  • Speech and swallowing problems (dysphagia)
  • Non-motor symptoms worsen (depression, sleep disturbances, constipation)

By stage 4, many patients require a walker or wheelchair and assistance with daily activities.

end stage parkinson's

End-Stage (Stage 5): Severe Disability

  • Near-total loss of mobility (bedridden or needing a wheelchair)
  • Severe speech impairment or inability to speak
  • Dementia, hallucinations, and significant cognitive decline
  • High risk of infections (pneumonia, UTIs, pressure sores)

At this stage, complications like aspiration pneumonia, sepsis, or fatal falls have a higher chance of occurring and leading to end of life.

How Parkinson’s Disease Leads to Death

While Parkinson’s itself is not directly fatal, its complications significantly shorten life expectancy. The most common causes of death from Parkinson’s disease include:

Recognizing signs of death in Parkinson’s patients helps families prepare:

  • Rapid decline in mobility (unable to stand or walk)
  • Difficulty swallowing (choking, weight loss)
  • Increased sleep, decreased responsiveness
  • Recurrent infections (pneumonia, sepsis)

The Critical Role of Hospice Care in Parkinson’s Disease

When PD reaches its final stages, hospice care becomes essential for maintaining comfort, dignity, and quality of life.

end stage parkinson's

How to Observe Parkinson’s Awareness Month 2025

This year’s theme, “United for Parkinson’s: Research, Care, and Hope,” highlights the importance of advancing treatments and supporting patients and caregivers.

Coping with End-Stage Parkinson’s

Facing Parkinson’s disease signs of dying is emotionally challenging. Here are some coping strategies:

Parkinson’s Awareness Month 2025 is a time to educate, advocate, and support those affected by this disease. Let’s unite this April Parkinson’s awareness month, fund research, and provide compassionate care for the Parkinson’s community.

At Ascend Hospice Care, we understand the complexities of end-of-life care for Parkinson’s patients. Our dedicated team of professionals is committed to delivering compassionate support every step of the way.

Facing the end of life is never easy, but with the proper support and resources, it can be a journey marked by dignity, comfort, and peace. Let us be a part of your care team and walk alongside you on this path, offering the care and compassion you deserve.

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We understand that the decision to transition towards end-of-life therapy needs to be taken with utmost care, that’s why we created this helpful blog.